Thursday, November 18, 2010

One to One Time

I think it is important sometimes to spend one to one time with each child we have. Hopefully that will reduce sibling rivalry and make each child feel special and important. Everyone wants a piece of mummy, whether it is a hug or attention. So during one to one time it is important to give all the attention and hugs and child craves for.

This holidays, the girl has an early holiday whereas the boy's holidays will start later since he wants to attend some school holiday program with his kindergarten friends. The boy is not unhappy that his school holidays is starting later. He is delighted to go to school to play with his friends and enjoy the various parties the school has organised.

The girl is happy to have an early start to her school holidays. I am sure she is also looking forward to having some one to one time with mummy. I wonder what we shall do. For starters, today, she wants me to sit and draw and colour a space picture with her. :)

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Tuesday, November 09, 2010

What to do?

My girl has been complaining about "dreaming" again and seeing "green green" and headaches. Even the doctor has trouble diagnosing these symptoms. The neurologist can't decide whether they are the auras that come with epilepsy or perhaps they could even be simple partial seizures, or perhaps they are auras associated with migraine or it could even by pyschological. Sigh.

Whatever they are, they are worrying. And the question is What to do? Should the doctor increase her antiseizure medications? I'd hate to see it being increased. I cringe when I think about what all the medication she is taking is doing to her developing kidneys. I am reluctant to increase the dosage. But then is the current dosage doing its job to stop symptoms? Perhaps increasing it would stop all these symptoms. But what if these weren't symptoms but something else. What if we increased it unnecessarily? What then? What if the symptoms do not go away after the increase. What then? Increase some more?

My opinion is to wait until something happens before deciding whether to increase. But of course that is a very hard decision. Waiting for something to happens means waiting for another seizure. But when will it happen? What if it happens in school in front of all her friends. She is already having trouble making friends since she is somewhat shy. The children are still so young. They will not understand her condition and may shy away from being friends with her. I'd hate to see that and what it would do to her already somewhat low self esteem.

What if? What if? What if? I am going mad. And each night whenever she flips this way or that or lets out a loud breath or murmur which she tends to do since she has a perpetual blocked nose and often breathes through the mouth when she sleeps, I literally jump up from my sleep worrying, so afraid I'd see another seizure. I don't know what to do and I don't think the doctor knows either. These things are hard to decide upon even for the doctor because they are unclear, not clean cut crystal clear like if you have a pain you take panadol that kind of thing. What to do?

I am relieved that her exams are over. At least there is no stress for now. One less seizure trigger. So for now, I can concentrate on trying to make sure she gets enough rest and sleep. However, next year she will be in Standard 3 in a Chinese School and we all know that that equates to little sleep and more stress. Sigh. We will cross the bridge when we come to it.

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